Take a look at some of the top SIOP 2019 programme picks for survivors, families and support organisations.
Wednesday, October 23
08:45 – 09:45
GENERATION Z – A NEW APPROACH IS NEEDED
Speaker: A. Ludick, South Africa
Q & A/Plenary Dialogue
10:15 – 11:45
Speaker: C. Prieto, Chile
Therapeutic education for the patients with cancer: a useful tool to be further developed
Invited Speaker: Nathalie Gaspard, France
Implementation of a program based on adapted physical activity and recommendations for second cancers prevention for teenagers with cancer
Invited Speaker: Rodolf Mongondry, France
Q & A/Plenary Dialogue
13:45 – 15:15
“The Mandala” : Grieving brothers and sisters share their feelings (36 minutes documentary)
Speaker: Michèle Dal Molin, France
Grieving parents, grieving siblings
Invited Speaker: Marie Frédérique Bacqué, France
Q & A/Plenary Dialogue
15:45 – 17:15
Chairs:
Marie Therain, France
Jessica de Lacour Sussac, France
Introduction to the lrp massage therapy program
Massage training session
Thursday, October 24
09:40 – 10:45
Opening Messages
CCI PresidentInvited Speaker: Ruth Hoffman, USA
SIOP PresidentEric Bouffet, Canada
CCI-Europe Survivors Network RepresentativeInvited Speaker: Carina Schneider, Austria
CCI-Europe Committee HeadInvited Speaker: Anita Kienesberger, Austria
UNAPECLE, LOC CCIInvited Speaker: Frédéric Arnold, France
Chair LOC, SIOPInvited Speaker: Christophe Bergeron, France
10:45 – 10:55
Parade of Member Nation Flags
Invited Speaker
Joao Braganca, Portugal
Luisa Basset, Spain
10:55 – 11:10
CCI 25th AnniversaryInvited Speaker: Carmen Auste, Philippines
11:20 – 11:50
Working Together – The Who Global Childhood Cancer Initiative
Invited Speaker: Andre Ilbawi, Switzerland
13:45 – 14:05
ESTABLISHING A PEDIATRIC POPULATION BASED CANCER REGISTRY IN A LOW-MIDDLE INCOME COUNTRY: CHALLENGES AND LESSONS LEARNEDSpeaker: R. Rivera-Gomez, Mexico
14:05 – 14:25
POPULATION BASED CHILDHOOD CANCER REGISTRATION IN AFRICASpeaker: D.M. Parkin, United Kingdom
14:25 – 14:45
TWELVE COUNTRIES PRESENT THEIR RESULTS OF A HOSPITAL BASED CHILDHOOD CANCER REGISTER IN FRENCH SPEAKING AFRICAN. ON BEHALF OF THE GFAOP (GROUPE FRANCO-AFRICAIN D’ONCOLOGIE PÉDIATRIQUE)Speaker: B. Mallon, France
14:45 – 15:15
Role of cancer registries in the global initiative for childhood cancerInvited Speaker: Eva Steliarova-Foucher, France
16:15 – 16:35
New Challenges About Biobanking For ResearchInvited Speaker: Marie France Mamzer, France
16:35 – 16:55
Specific Challenges About Biological Specimen Banking in Pediatric OncologyInvited Speaker: Francois Doz, France
17:15 – 17:35
RESEARCH ABOUT CHILDHOOD CANCER : WHAT TOPICS AND ANSWERS ARE PARENT AND PATIENT LOOKING FOR ?Speaker: F. Arnold, France
17:35 – 17:55
Think big and get together to drive and accelerate research priorities on childhood cancerInvited Speaker: Patricia Blanc, France
17:55 – 18:15
U-LINK : A PLATFORM PROVIDING INFORMATION ON PEDIATRIC ONCOLOGY CLINICAL TRIALS AVAILABLE IN FRANCE AND FINANCIAL SUPPORT FOR FAMILIES OF CHILDREN WITH CANCERSpeaker: F. Arnold, France
18:15 – 18:30
Q & A/Plenary Dialogue
Friday, October 25
08:40 – 08:55
TRAVEL FROM ONE TREATMENT CENTRE TO ANOTHER: UNDERSTANDING THE BURDENS OF TRAVEL AND ACCOMMODATION AND THE IMPACT OF THESE ON A FAMILY UNITSpeaker: V. Inglis, United Kingdom
08:55 – 09:10
ACREDITAR‘S FAMILY HOUSES: A HOME FAR AWAY FROM HOME FOR DISLODGED FAMILIES DURING PEDIATRIC CANCER TREATMENTSpeaker: M. Cruz, Portugal
09:10 – 09:25
AROH – A JOURNEY OF 6 YEARS, FROM SERVING 5 HOSPITALS TO 40.Speaker: B. Nair, India
09:25 – 09:40
THE PARENTS ADVISORY GROUP: AN INTERNATIONAL MODEL FOR PAEDIATRIC ONCOLOGY SUPPORT GROUPSSpeaker: T. Di Lallo, Australia
09:40 – 09:55
ALL PROTOCOL ILLUSTRATED AS SIMPLIFIED MAPS. FOR DOCTORS CHILDREN AND FAMILIES, TO EXPLAIN AND UNDERSTAND THE TREATMENT. DESIGNED BY A MOTHER TO A CURED CHILDSpeaker: Z. Shalev, Israel
09:55 – 10:10
Q & A
10:40 – 11:00
CCI Europe survivors network: structure, projects, awareness campaignInvited Speaker: Carina Schneider, Austria
11:00 – 11:20
Survivors are learning and leading the research to manage their long‐term side effectsInvited Speaker: Chandan Kumar, India
11:20 – 11:40
FRENCH NATIONWIDE SURVIVORS ASSOCIATION : LES AGUERRIS, ADULTS CURED FROM CHILDHOOD CANCERSpeaker: S. Heinrich, France
11:40 – 12:00
GIVING BACK TO HELP OTHER CHILDRENSpeaker: P. Nyamadi, Ghana
12:00 – 12:10
Q & A
Saturday, October 26
08:30 – 08:50
STATE OF KNOWLEDGE ON THE RISK FACTORS OF CHILDHOOD AND ADOLESCENT CANCERSSpeaker: J. Carretier, France
08:50 – 09:10
Infectious and immune risk factors for childhood cancerInvited Speaker: Jacqueline Clavel, France
09:10 – 09:30
Q & A
09:30 – 09:45
MANAGEMENT OF PAIN INDUCED IN THE DEPARTMENT OF HEMATO-ONCOLOGY OF THE MOTHER AND CHILD CENTER OF THE CHANTAL BIYA FOUNDATION OF YAOUNDE.Speaker: G.J.T. Nyemb Mbog, Cameroon
09:45 – 10:00
THE SAFE PLACE EXPERIENCE – USING IMAGERY TO SUPPORT CHILDREN DURING PAINFUL PROCEDURES IN PEDIATRIC ONCOLOGYSpeaker: K. Maslak, Italy
10:00 – 10:10
Q & A
10:40 – 10:55
MALNUTRITION IN CHILDHOOD CANCER PATIENTS IN MALAWI: AGE-BASED PREVALENCE AND EFFECT ON MORTALITY.Speaker: M. Huibers, Malawi
10:55 – 11:10
AIMING FOR ZERO ERRORS -CREATING A NOVEL OPEN-SOURCE SIMPLE PLATFORM FOR HIGHLY AUTOMATED PATIENT-SPECIFIC CHEMOTHERAPY PRESCRIPTIONS AT TUMAINI LA MAISHA / MUHIMBILI NATIONAL HOSPITAL, TANZANIASpeaker: J. Hassan, Tanzania
11:10 – 11:25
PAEDIATRIC ONCOLOGY SYSTEM INTEGRATION TOOL (POSIT): A HEALTH SYSTEMS PERFORMANCE FRAMEWORK FOR CHILDHOOD CANCER IN LOW- AND MIDDLE-INCOME COUNTRIESSpeaker: B. Maser, Canada
11:25 – 11:40
TBAInvited Speaker: Anja Nitzsche, Germany
11:40 – 11:55
Q & A
Stay tuned for more SIOP 2019 programme updates.
